RethinkBPD Welcomes New Readers from Columbia University!

February 25th, 2010

Just wanted to thank Dr. Kathy Berenson for inviting me to speak tonight at Columbia University. Despite the snow storm, quite a few showed up that they had to put a couple of extra seats out. I was excited, happy and a little nervous to share my story but I think it went well. What do you think? I would love to hear some feedback if you were there tonight.

I’ll be posting up the video of the speech in a few days. Come back and check it out soon. And oh, if you wanted to follow my boxing journey, check it out at thefightwithinus.com.

Thanks again for having me and I’m so glad to see you here on RethinkBPD!

Amanda

Recovery is Possible

October 6th, 2009

I am excited to let you know that RethinkBPD has received endorsement from Commissioner Michael Hogan, New York State Office of Mental Health:

While many mental health issues are emerging from a cloud of stigma, this is nowhere more important than for BPD. For this reason, I am very impressed with RethinkBPD. This project will not just demonstrate the challenges faced by people with this disorder, but will more importantly reveal that recovery is possible, that effective treatment exists, and that hope is realistic.

Prior to joining the Office of Mental Health, Dr. Hogan served as Director of the Ohio Department of Mental Health, and has chaired the President’s New Freedom Commission on Mental Health in 2002-2003. He also served on the National Advisory Mental Health Council and was President of the National Association of State Mental Health Program Directors. He has co-authored a book and several national reports, and written over 50 journal articles or book chapters. Thank you Commissioner Hogan!

BPD Profile: Struggles, Breakdown & Breakthrough

September 25th, 2009

Amanda Wang, producer of RethinkBPD, recounts her struggle and eventual breakthrough dealing with mental illness and Borderline Personality Disorder.

Blame vs Gain: Caring for those with BPD without Burning Out

August 25th, 2009

by Seth Axelrod, PhD

Whether it’s psychotherapy, friendship, or family, maintaining a positive relationship with someone with borderline personality disorder (BPD) can be extremely challenging at times. In my clinical experience I have often listened to family members who, with the very best intentions, fall into an overwhelming sense of frustration and despondency as they struggle to live and care for those with BPD. As patience wears thin, those who were once eager and hopeful about their loved one’s progress begin to experience the all-too-familiar characteristics of burnout. Strong emotional needs, extreme insecurities, and communication skills deficits of a person with BPD can at times make navigating this relationship like walking through a minefield; nearly impossible without a fairly clear map to follow.

Different approaches for navigating through such difficulties have been suggested by BPD experts. Some clinicians and researchers believe that the problem is rooted in poor boundaries (the failure of the person with BPD to respect the appropriate give and take of relationships) or splitting (a defense mechanism in which the person with BPD is unable to tolerate the thought of people having both good and bad qualities at the same time: idealizing someone who satisfies his or her needs one moment and vilifying someone who frustrates them in the next). Both of these models of understanding suggest that caretakers should guard against letting the individual with BPD act on their problematic relationship patterns and should confront these faults when they arise. These proposed solutions, however, can inadvertently harm relationships further. For example, blaming or pointing the finger at the person with BPD often feeds frustration and anger in the caregiver and shame in the individual confronted.  Further, by placing responsibility for the problem squarely on the shoulders of the individual with BPD, it is easy for caregivers to become hopeless if things do not improve.  So how then might we be able to address both the needs of caretaker and loved one in an effective and productive manner?

An alternative approach can be taken from one of the key elements used in Marsha Linehan’s Dialectical Behavior Therapy (DBT). This approach understands that there may be a mismatch between the needs of the individual with BPD and the capacity of the caregiver. In other words, there is nothing wrong with the individual with BPD wanting to have certain needs met — the problem occurs when satisfying these needs is beyond the preferences and/or capabilities of the family member, partner, or friend. Although we can generally push ourselves to meet the wants or needs of others in the short term (and often need to at times), we become subject to burnout if we continuously push ourselves past our personal limits. Potential frustrations, depressive emotions, hopelessness, and a desire to decrease contact begin to deepen. What we can do instead is regularly assess and assert our own personal limits — a focus on the preferences we each have for the give and take of relationships and for how others approach communication with us. Notice that as personal limits, these limits are understood to vary from person to person, or even within the same person across time or circumstance.

So, how can you effectively observe your personal limits and improve your relationship? Before you speak with the individual you are struggling with, take some time to assess and prepare the following:

  1. Attend to personal limits. Carefully assess your comfort within and following interactions. Ask yourself if you are comfortable with how the person treats you and with meeting his/her needs.
  2. Define the behavior that exceeds limits. Get as specific as possible about the individual’s actual behaviors that exceed your limit. Be sure to stick to the facts, and avoid opinions and judgments.
  3. Assume the best. Consider benevolent reasons why the individual might act as he/she does. Consider his/her needs and difficulties with effective communication and with managing emotional reactions. Be sure to look to your supports for help with this if you can’t come up with an empathic reason for the behavior.
  4. Prioritize. Notice if there are multiple behaviors that exceed your personal limits. If so, choose one to focus on addressing first. In the meanwhile, be prepared to tolerate stretching your limits around other behaviors, until you can address these in turn.
  5. Define the desired behavior. Given your best understanding of the individual’s wants and needs, as well as your own personal limits, identify what you would have him/her do differently. Identify a new behavior that responds to his/her need, and that also supports your personal limit.

Assert your personal limit. Once you have identified your personal limits, you are now ready to speak with the individual. Here are a few steps, using a skill from DBT, that will help keep the conversation focused:

  1. Pick the best time for the conversation. Ask if they are able to sit down and discuss something important with you.
  2. Describe the problem by reviewing the facts about the other person’s behavior. Be sure to avoid any judging or negative assumptions about their intentions.
  3. Express your limitation. Be clear in communicating that this limit is about your own needs, wants, or abilities, and the difficulties you’ve experienced by exceeding them.
  4. Ask the individual to do the new desired behavior. If necessary, show him/her how to practice this new behavior.
  5. Reinforce your request by explaining how the new behavior will allow you to better support him/her and maintain your relationship.

Here, the issue is not defined by the person’s poor boundaries or splitting, but by identifying and attending to our own individualized preferences and needs. By owning these personal limits, we invite the individual to join us in a positive, open, and mutually respectful relationship of equals — enhancing not only our ability to continue the relationship and reduce conflict, but to actually create a relationship that we would choose to embrace.


SethAxelrod

Seth Axelrod, PhD, is an Associate Professor at the Yale University School of Medicine, Department of Psychiatry and is the team leader for the Dialectical Behavior Therapy Adult Intensive Outpatient Program at Yale-New Haven Psychiatric Hospital. Dr. Axelrod leads workshops for professionals and family members addressing personal limits and burnout as they relate to BPD.


5 Things We’ve Learned Since Our Daughter’s BPD Diagnosis

August 5th, 2009

by Diane and Jim Hall

Since borderline personality disorder (BPD) was first listed in the Diagnostic and Statistical Manual as a legitimate diagnosis in 1980, the concept of the negative, troubled family environment of the person with the diagnosis has slowly been losing its horrifying stigma. Families were viewed by early medical school educators as causative of the disorder and vilified by professionals. Clients were often advised to separate from their families and concerned families were excluded from treatment of their loved one.

Recent evidence, however, has shown that the supportive, involved family of a person with BPD has a measurable effect on the recovery of the individual. Imagine that – the family can help! We can be influential in our loved one’s recovery — and care for ourselves as well!

Here are the 5 major things we’ve learned since our daughter’s BPD diagnosis in 2001:

  1. The behaviors are reflective of the illness. We recognize that the negative behaviors are an outgrowth of core aspects of the disorder.  Borderline Personality Disorder is real. How did we learn this? Through family psycho-education courses and conferences sponsored by NAMI and NEA-BPD.
  2. Early, thorough, and correct diagnosis and appropriate, proven treatment are paramount to a path of recovery. How did we discover this?

    • We reviewed resources from NAMI and NEA-BPD.
    • Did and still do extensive reading and networking.
    • Attended conferences and support groups.
    • Consulted with helpful professionals
    • Evaluate all available information.
    • Another “gold-standard” website we admire and use frequently is Dr. Robert O. Friedel’s, BPD Demystified.
  3. We love our daughter and cherish all the aspects of her life.  We always keep faith that she loves us too.  She is an individual with BPD. We address her as a person, not as an illness.
  4. We investigated all avenues of health insurance including federal and state funding to insure financial support for the best treatment programs available for her needs. We discussed the top three choices with our daughter. Detailed “fact-finding missions” can lead to educated choices for care.
  5. Our lives focus on Education, Skills, and Support. Life with BPD is admittedly different.  Still, it can be rewarding. Acceptance and Advocacy heal.


Diane and Jim Hall are Family Educators for NAMI and NEA-BPD.

Websites mentioned in article:

Our Opportunity

July 22nd, 2009

by Amanda R. Wang

If someone told me two years go that I’d be standing here before you, helping bring about social change, I wouldn’t believe you.

There were many moments in my life I didn’t think I was going to pull through — moments of desperation and despair; of pain and drastic measures; moments of not knowing why and wanting to give it all away. But at each of these moments, I’d somehow find my way and realize that you were there standing at the other end. When I was at the psychiatric ER you patiently waited outside the door, attempting to carry a conversation through the thick glass window. When I couldn’t control my crying, sitting at my desk, you looked all over the office to find a tissue for me to use. When I couldn’t say anything except for the tears rolling down my cheeks, you silently sat beside me, listening with your eyes. And when I didn’t know what was wrong with me after all these years, you took out the DSM-IV and told me about a diagnosis called BPD.

It sure was not easy, but to all the friends, family, coworkers, health professionals, even strangers, I thank you for helping me get back on my feet. It is an extremely humbling and exciting thing to know that because of what you have given me — literally a second lease on life — I can now give back just as much as I have received.

This is my opportunity — our opportunity — to help others who battle through the same (and even more) painful moments of borderline personality disorder. As I think back to the deepest, darkest moments of my life I would remember cursing the heavens, asking what, really, was the whole point of living through a pain that seemed to have no end. How could I have ever imagined that I’d be a part of an interconnected movement of research, treatment, grass root programs and support groups, helping create the very hope we are looking for. Because even in our darkest hours of despair, in our sorrow and confusion, in our desolation and fear, we — BPD and all — can never be thrown away.

Welcome to RethinkBPD. Let’s begin.